35 Days…

Penelope has been in the hospital for 35 days now. I can’t believe it’s been that long. She went in with flu like symptoms then had two bowel surgeries, was on a breathing tube for two weeks some of which she was also fighting off pneumonia. Following the breathing tube, she had to weaned off of sedation medications. The list of ups and downs from the experience could go on and on. We have been so lucky to be in such an amazing hospital with amazing doctors and nurses. We have been really blessed with so many supportive people around us as well.

I have sat down to write this post so many times and then walked away. Talking about it can be hard because it brings up so many emotions. I think some people have thought we went home since we’ve been so silent about what is going on. When she does go home, I’ll make sure to tell you all! Right now what is keeping us in here is the fact that she is not eating enough. Since Penelope had the tube in her throat for so long, it is common that kids develop an aversion to eating especially from a bottle. Since she is 9 months old, she still needs to eat from a bottle to get her nutritional needs met. We’ve been working with specialists once or twice a day, Monday to Friday to try to get her eat more. Penelope is such a strong little girl I know she’ll get through this.

Lindsay…